Tuesday, 1 May 2007

Just started artificial feeding

Well I have just started TPN which is basically where they feed me a bag through my port a cath over 24 hours that contains all of my nutritional requirements. My gastro tract (GI) has decided to pack it in and therefore I am not absorbing my food - it was one of the side effects of the chemo that they were prepared for so it is not really that bad. The TPN will allow me to not worry about eating and give my GI tract a bit of a break. The good news though is that I am allowed to eat anything I do feel like so it is the best of both worlds. I am hoping that once this TPN kicks in my energy might pick up a little. The tiredness is pretty bad still but if in 6 months I am at home playing with the kids and Cam then it is all worth it.
Yesterday I had a nice day. Cam and Tiernan came and picked me up in the morning and I spent the morning resting at home (yes resting - I actually sat on the couch and even spent some time sleeping in bed). It was an effort to get out but it really picked up my spirits. Jane and Lucy visited in the afternoon and they brought me back to the hospital. I had a blood transfusion last night and actually fell asleep at 7.15pm. I then slept until about 1am but had a fitful sleep the rest of the evening. I felt pretty miserable this morning and did nothing but rest but that is what I am here to do! Mum came in and visited with some of her special home made chicken soup for lunch which was just heaven. She has left me a good supply of that and dad's yummy chicken and corn soup and they are just perfect for how I am feeling - the medicinal properties of home made chicken soup never ceases to amaze me! Then Cam and Arielle came in and had a visit which was just lovely. I don't often get to spend time with just Arielle and it was some really special time and I got lots of lovely cuddles and chats. Arielle then had a little nap and Cam and I got to just sit and be - it was so nice. Once we were well rested, Sue brought Tiernan in and he had a lovely visit. He was such a well behaved little man - I cannot believe how much he has grown up - he has coped with so much in his little life - I am really proud of him.
So now it is time for me to rest again - it looks like I have gone to granny hours - it is 6.15pm and I am thinking about bed! My stem cells will go in tomorrow. They said I will still be going downhill for a few more days but at least the process will be underway. I hope everyone has a lovely night.


Sharon said...

Granny hours are lovely Bernadette, I had a nap on the lounge after work the other day then got up and basically went to bed!!! Nothing wrong with nanna naps- tee hee!! Glad some nice home made tucker is finding the spot. Take care, see you soon. Love Sharon (I'm a wiz at this comment thing now!!!)

Pauline said...

Hi Bernadette

Hope things are going OK for you with all your treatment. Have been thinking of you and have tried to reply to your blogg but seems it did not go through, let's try again. Anyway just want you to know we are here to support you on this journey, keep up your spirits you have been an inspiration to us and we know you will continue to give it all you have. Lots of love from Pauline & family.