Well all my treatment is now finished!! Yippee!! I still have to see the heamatologist (weekly) and cardiologist (quarterly) but at least there is no more treatment to attend. We had a little scare last week. My blood test results weren't so good and there was a concern that perhaps there was a new tumour. I had a CT on Thursday and not only did it show there were no new tumours but it also showed the mass that was showing on the last CT was even smaller and the shadowing that was showing on my lungs and liver last time was no longer there at all. So basically it was even better than we were hoping for. I'll have a few more blood tests on Tuesday to help work out what is going on but at least it is not the cancer. My red blood cells are down a bit and not recovering so I may be up for a blood transfusion but I dont mind that as I always feel so great afterwards. My immunity is not picking up so well so I also may have to have monthly transfusions of something called Intragam which will give my immune system a little help until it works out how to recover on it's own. Basically at present I have the immune system of a 2 month old baby without the benefit of getting a mother's immunity from breast milk. It is all quite fascinating really (I'd find it more fascinating and less scary if it wasn't happening to me!!).
Energy wise I am feeling better each day. I am waking before 10am most days now which is a big improvement on my 11am to 1pm waking time of only a few weeks ago. Slowly I am eating more although my weight is still dropping a little (43.5kg at the moment - my doctor is not too happy with me). I am spending quite a bit of time at mum and dad's and that is really helping with both the resting and the eating side of things. They are both great cooks and they really look after me - I couldn't ask for better parents.
We are looking forward to next week. Mum, dad, Tiernan, Arielle and I are going away to Kings Beach (Sunshine Coast) for the week. We are staying in a unit opposite the beach and it will be great fun. They are off water restrictions up there and there are some fantastic water play features at the beach which Tiernan will just love. There are lots of rock pools and beautiful sandy beaches as well as a great kids sea water pool which is all under shade sails. There are also jettys that you can fish from. It is going to be a lovely holiday and we cannot wait. Tiernan keeps telling dad to remember to bring his fishing line as he wants to go fishing and catch a snapper!!
Well not much else to report. As usual I have posted some photos of my two adorable children. The first is of Tiernan and I at Seaworld (mum, Tiernan, Arielle and I went last week) and the second is of Arielle balancing her bowl on her head (and being very proud of her trick).